RT Journal Article
T1 [The NADYA-SENPE Home Enteral Nutrition Registry in Spain: years 2018 and 2019].
T2 Registro del Grupo NADYA-SENPE de Nutrición Enteral Domiciliaria en España: años 2018 y 2019.
A1 Wanden-Berghe, Carmina
A1 Campos Martín, Cristina
A1 Álvarez Hernández, Julia
A1 Burgos Peláez, Rosa
A1 Matía Martín, Pilar
A1 de la Cuerda Compés, Cristina
A1 Lobo, Gabriela
A1 Martínez Olmos, Miguel Ángel
A1 De Luis Román, Daniel Antonio
A1 Palma Milla, Samara
A1 Gonzalo Marín, Montserrat
A1 Padín López, Susana
A1 Luengo Pérez, Luis Miguel
A1 Santacruz Carmona, Nieves
A1 Pintor de la Maza, Begoña
A1 Suárez Llanos, José Pablo
A1 Irles Rocamora, José A
A1 Forga Visa, María de Talló
A1 Martín Palmero, María Ángela
A1 Sánchez Sánchez, Rebeca
A1 Cardona Pera, Daniel
A1 Tejera Pérez, Cristina
A1 Ballesta Sánchez, Carmen
A1 Higuera Pulgar, Isabel
A1 Bonada Sanjaume, Anna
A1 Penacho Lázaro, María Ángeles
A1 Garde Orbaiz, Carmen
A1 Arraiza Irigoyen, Carmen
A1 Martín Folgueras, Tomás
A1 Virgili Casas, Nuria
A1 Cánovas Gaillemin, Bárbara
A1 Maíz Jiménez, María Irene
A1 Del Olmo García, María Dolores
A1 Carabaña Pérez, Fátima
A1 Parés Marimón, Rosa María
A1 Morán López, Jesús M
A1 Mauri Roca, Sílvia
A1 García Puente, Ignacio
A1 Sánchez-Vilar Burdiel, Olga
A1 García Delgado, Yaiza
A1 Miserachs Aranda, Nuria
A1 Calañas Continente, Alfonso
A1 Apezetxea Celaya, Antxón
A1 Pereira Soto, Manuel Ángel
A1 Sánchez Martos, Eva Ángeles
A1 Ponce González, Miguel Á
K1 Nutrición enteral. Soporte nutricional. Cuidados domiciliarios. Registros.
AB Aim: to present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the years 2018 and 2019. Material and methods: from January 1, 2018 to December 31, 2019 the home enteral nutrition registry was recorded, and afterwards a further descriptive and analytical analysis was done. Results: in 2018, 4756 active patients were registered and the prevalence was 101.79 patients per one million inhabitants; in 2019 there were 4633 patients with a prevalence of 98.51 patients per one million inhabitants. They originated in 46 hospitals: 51.3 % were male, and median age was 71.0 years in both periods. The most frequent diagnosis was a neurological disorder that presents with aphagia or severe dysphagia - 58.7 % and 58.2 %, respectively. The main cause of episode termination was death. A total of 116 pediatric patients were registered in 2018 and 115 in 2019. Females represented 57.8 % and 59.1 %, respectively, in each of the periods. Median age at the beginning of HEN was 5 and 7 months. The most commonly recordered diagnostic group (42.2 % and 42.6 %) was included within the other pathologies group, followed by neurological disorders that present with aphagia or severe dysphagia in 41.4 % and 41.7 % of children. The route of administration was gastrostomy in 46.6 % and 46.1 %, respectively, in each of the periods. Conclusions: the NED registry of the NADYA-SENPE group continues to operate uninterruptedly since its inception. The number of registered patients and the number of participating hospitals remained stable in the last biennium analyzed.
YR 2022
FD 2022
LK http://hdl.handle.net/10668/21755
UL http://hdl.handle.net/10668/21755
LA es
DS RISalud
RD Jun 27, 2025