%0 Journal Article
%A Wanden-Berghe, Carmina
%A Campos Martín, Cristina
%A Álvarez Hernández, Julia
%A Burgos Peláez, Rosa
%A Matía Martín, Pilar
%A de la Cuerda Compés, Cristina
%A Lobo, Gabriela
%A Martínez Olmos, Miguel Ángel
%A De Luis Román, Daniel Antonio
%A Palma Milla, Samara
%A Gonzalo Marín, Montserrat
%A Padín López, Susana
%A Luengo Pérez, Luis Miguel
%A Santacruz Carmona, Nieves
%A Pintor de la Maza, Begoña
%A Suárez Llanos, José Pablo
%A Irles Rocamora, José A
%A Forga Visa, María de Talló
%A Martín Palmero, María Ángela
%A Sánchez Sánchez, Rebeca
%A Cardona Pera, Daniel
%A Tejera Pérez, Cristina
%A Ballesta Sánchez, Carmen
%A Higuera Pulgar, Isabel
%A Bonada Sanjaume, Anna
%A Penacho Lázaro, María Ángeles
%A Garde Orbaiz, Carmen
%A Arraiza Irigoyen, Carmen
%A Martín Folgueras, Tomás
%A Virgili Casas, Nuria
%A Cánovas Gaillemin, Bárbara
%A Maíz Jiménez, María Irene
%A Del Olmo García, María Dolores
%A Carabaña Pérez, Fátima
%A Parés Marimón, Rosa María
%A Morán López, Jesús M
%A Mauri Roca, Sílvia
%A García Puente, Ignacio
%A Sánchez-Vilar Burdiel, Olga
%A García Delgado, Yaiza
%A Miserachs Aranda, Nuria
%A Calañas Continente, Alfonso
%A Apezetxea Celaya, Antxón
%A Pereira Soto, Manuel Ángel
%A Sánchez Martos, Eva Ángeles
%A Ponce González, Miguel Á
%T [The NADYA-SENPE Home Enteral Nutrition Registry in Spain: years 2018 and 2019].
%D 2022
%U http://hdl.handle.net/10668/21755
%X Aim: to present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the years 2018 and 2019. Material and methods: from January 1, 2018 to December 31, 2019 the home enteral nutrition registry was recorded, and afterwards a further descriptive and analytical analysis was done. Results: in 2018, 4756 active patients were registered and the prevalence was 101.79 patients per one million inhabitants; in 2019 there were 4633 patients with a prevalence of 98.51 patients per one million inhabitants. They originated in 46 hospitals: 51.3 % were male, and median age was 71.0 years in both periods. The most frequent diagnosis was a neurological disorder that presents with aphagia or severe dysphagia - 58.7 % and 58.2 %, respectively. The main cause of episode termination was death. A total of 116 pediatric patients were registered in 2018 and 115 in 2019. Females represented 57.8 % and 59.1 %, respectively, in each of the periods. Median age at the beginning of HEN was 5 and 7 months. The most commonly recordered diagnostic group (42.2 % and 42.6 %) was included within the other pathologies group, followed by neurological disorders that present with aphagia or severe dysphagia in 41.4 % and 41.7 % of children. The route of administration was gastrostomy in 46.6 % and 46.1 %, respectively, in each of the periods. Conclusions: the NED registry of the NADYA-SENPE group continues to operate uninterruptedly since its inception. The number of registered patients and the number of participating hospitals remained stable in the last biennium analyzed.
%K Nutrición enteral. Soporte nutricional. Cuidados domiciliarios. Registros.
%~