RT Journal Article
T1 Developing a medication adherence technologies repository: proposed structure and protocol for an online real-time Delphi study.
A1 Nabergoj Makovec, Urska
A1 Goetzinger, Catherine
A1 Ribaut, Janette
A1 Barnestein-Fonseca, Pilar
A1 Haupenthal, Frederik
A1 Herdeiro, Maria Teresa
A1 Grant, Sean Patrick
A1 Jácome, Cristina
A1 Roque, Fatima
A1 Smits, Dins
A1 Tadic, Ivana
A1 Dima, Alexandra L
A1 European Network to Advance Best practices and technoLogy on medication adherencE (ENABLE), 
A1 European Network to Advance Best Practices and TechnoLogy on Medication AdherencE (ENABLE), 
K1 health informatics
K1 public health
K1 social medicine
AB An online interactive repository of available medication adherence technologies may facilitate their selection and adoption by different stakeholders. Developing a repository is among the main objectives of the European Network to Advance Best practices and technoLogy on medication adherencE (ENABLE) COST Action (CA19132). However, meeting the needs of diverse stakeholders requires careful consideration of the repository structure. A real-time online Delphi study by stakeholders from 39 countries with research, practice, policy, patient representation and technology development backgrounds will be conducted. Eleven ENABLE members from 9 European countries formed an interdisciplinary steering committee to develop the repository structure, prepare study protocol and perform it. Definitions of medication adherence technologies and their attributes were developed iteratively through literature review, discussions within the steering committee and ENABLE Action members, following ontology development recommendations. Three domains (product and provider information (D1), medication adherence descriptors (D2) and evaluation and implementation (D3)) branching in 13 attribute groups are proposed: product and provider information, target use scenarios, target health conditions, medication regimen, medication adherence management components, monitoring/measurement methods and targets, intervention modes of delivery, target behaviour determinants, behaviour change techniques, intervention providers, intervention settings, quality indicators and implementation indicators. Stakeholders will evaluate the proposed definition and attributes' relevance, clarity and completeness and have multiple opportunities to reconsider their evaluations based on aggregated feedback in real-time. Data collection will stop when the predetermined response rate will be achieved. We will quantify agreement and perform analyses of process indicators on the whole sample and per stakeholder group. Ethical approval for the COST ENABLE activities was granted by the Malaga Regional Research Ethics Committee. The Delphi protocol was considered compliant regarding data protection and security by the Data Protection Officer from University of Basel. Findings from the Delphi study will form the basis for the ENABLE repository structure and related activities.
YR 2022
FD 2022-04-22
LK http://hdl.handle.net/10668/20145
UL http://hdl.handle.net/10668/20145
LA en
DS RISalud
RD Apr 4, 2025