TY - JOUR AU - Schwerzmann, Markus AU - Goossens, Eva AU - Gallego, Pastora AU - Kovacs, Adrienne H AU - Moons, Philip AU - Swan, Lorna AU - Tobler, Daniel AU - de Stoutz, NoƩmi AU - Gabriel, Harald AU - Greutmann, Matthias AU - Roos-Hesselink, Jolien W AU - Sobanski, Piotr Z AU - Thomet, Corina PY - 2020 DO - 10.1093/eurheartj/ehaa614 UR - http://hdl.handle.net/10668/16177 T2 - European heart journal AB - Survival prospects in adults with congenital heart disease (CHD), although improved in recent decades, still remain below expectations for the general population. Patients and their loved ones benefit from preparation for both unexpected and... LA - en KW - Adult congenital heart disease KW - Advance care planning KW - Adult KW - Advance Care Planning KW - Cardiovascular Nursing KW - Communication KW - Heart Defects, Congenital KW - Humans KW - Palliative Care TI - Recommendations for advance care planning in adults with congenital heart disease: a position paper from the ESC Working Group of Adult Congenital Heart Disease, the Association of Cardiovascular Nursing and Allied Professions (ACNAP), the European Association for Palliative Care (EAPC), and the International Society for Adult Congenital Heart Disease (ISACHD). TY - research article VL - 41 ER -