RT Journal Article
T1 Recommendations for advance care planning in adults with congenital heart disease: a position paper from the ESC Working Group of Adult Congenital Heart Disease, the Association of Cardiovascular Nursing and Allied Professions (ACNAP), the European Association for Palliative Care (EAPC), and the International Society for Adult Congenital Heart Disease (ISACHD).
A1 Schwerzmann, Markus
A1 Goossens, Eva
A1 Gallego, Pastora
A1 Kovacs, Adrienne H
A1 Moons, Philip
A1 Swan, Lorna
A1 Tobler, Daniel
A1 de Stoutz, Noémi
A1 Gabriel, Harald
A1 Greutmann, Matthias
A1 Roos-Hesselink, Jolien W
A1 Sobanski, Piotr Z
A1 Thomet, Corina
K1 Adult congenital heart disease
K1 Advance care planning
AB Survival prospects in adults with congenital heart disease (CHD), although improved in recent decades, still remain below expectations for the general population. Patients and their loved ones benefit from preparation for both unexpected and predictable deaths, sometimes preceded by a prolonged period of declining health. Hence, advance care planning (ACP) is an integral part of comprehensive care for adults with CHD. This position paper summarizes evidence regarding benefits of and patients' preferences for ACP and provides practical advice regarding the implementation of ACP processes within clinical adult CHD practice. We suggest that ACP be delivered as a structured process across different stages, with content dependent upon the anticipated disease progression. We acknowledge potential barriers to initiate ACP discussions and emphasize the importance of a sensitive and situation-specific communication style. Conclusions presented in this article reflect agreed expert opinions and include both patient and provider perspectives.
YR 2020
FD 2020
LK http://hdl.handle.net/10668/16177
UL http://hdl.handle.net/10668/16177
LA en
DS RISalud
RD Apr 5, 2025