%0 Journal Article
%A Meca-Lallana, Jose E
%A Prefasi, Daniel
%A Pérez-Miralles, Francisco
%A Forero, Lucía
%A Sepúlveda, María
%A Calles, Carmen
%A Martínez-Ginés, María L
%A González-Suárez, Inés
%A Boyero, Sabas
%A Romero-Pinel, Lucía
%A Sempere, Ángel P
%A Meca-Lallana, Virginia
%A Querol, Luis
%A Costa-Frossard, Lucienne
%A de Castro-Trapiello, Hugo
%A Canal, Neus
%A Maurino, Jorge
%T Perception of Stigma in Patients with Neuromyelitis Optica Spectrum Disorder.
%D 2021
%@ 1177-889X
%U http://hdl.handle.net/10668/17612
%X Perception of stigma was associated with low self-esteem, psychological problems, and decreased health-seeking behavior among patients with different neurological disorders. The purpose of this study was to assess stigmatization and its impact in patients with neuromyelitis optica spectrum disorder (NMOSD). A non-interventional study was conducted at thirteen neuroimmunology clinics in Spain. Patients with a diagnosis of NMOSD (2015 Wingerchuk criteria) were included. The 8-item Stigma Scale for Chronic Illness (SSCI-8), the Expanded Disability Status Scale (EDSS), the 29-item Multiple Sclerosis Impact Scale (MSIS-29), the Beck Depression Inventory-Fast Screen (BDI-FS), the MOS Pain Effects Scale (MOS-PES) and the Fatigue Impact Scale for Daily Use (D-FIS) were used to assess the perception of stigma, disability, quality of life, mood, pain, and fatigue, respectively. Associations between outcome measures were analyzed using Spearman's rank correlation. Seventy-one patients were studied (mean age: 47.4 years ± 14.9, 81.7% female, mean time since disease onset: 9.9 years ± 8.1). The median EDSS score was 3.0 (interquartile range 1.5, 4.5). Stigma prevalence was 61.4% (n=43). Thirty-one patients (43.6%) had depression. The SSCI-8 score showed a significant correlation with both physical (rho=0.576, p Stigma is a common phenomenon affecting over 6 out of 10 patients with NMOSD. Understanding stigma may be useful to develop educational strategies improving NMOSD knowledge.
%K depression
%K neuromyelitis optica spectrum disorder
%K patient-reported outcomes
%K quality of life
%K stigma
%~