RT Journal Article
T1 Status of transition care in inflammatory bowel disease in Spain. Different medical perspectives.
A1 Sánchez Sánchez, César
A1 Tolín Hernani, María Del Mar
A1 Álvarez Calatayud, Guillermo
A1 Miranda Cid, María Del Carmen
A1 Navas López, Víctor M
A1 Marín Jiménez, Ignacio
A1 Menchen, Luis Alberto
A1 García Fernández, Paloma
A1 Merino Sánchez-Cañete, Ana
AB transition is important for a successful follow-up of adolescents with inflammatory bowel disease (IBD). The objectives of the study were to establish the situation of transition in Spain and to identify needs, requirements and barriers to transition from pediatric and adult gastroenterologist perspectives. a structured survey for self-completion using the REDCap platform was distributed via the Spanish Society for Pediatric Gastroenterology, Hepatology and Nutrition (SEGHNP) and the Spanish Working Group on Crohn's Disease and Ulcerative Colitis (GETECCU). The questionnaire contained closed and ranked questions concerning transition, perceived needs, organizational, clinician and patient related barriers to transition. one hundred and forty surveys were answered, 53% in pediatrics (PG) and 47% from adult gastroenterologists (AG) among 90 hospitals; 66% of them were reference centers. There was a higher response from pediatricians (18.2%) versus adult gastroenterologists (8.3%) (p = 0.03). A structured transition program is adequate in 42.2% centers. A well-structured transition was perceived as very important by 79.5% of PG and 63% of AG (p = 0.03). A higher proportion of both groups identified inadequacies in the preparation of adolescents for transfer (43% and 38%, p = ns). The main deficit areas were the lack of knowledge about disease and treatment as well as the lack of self-advocacy and care coordination. Lack of resources, time and critical mass of patients were the highest ranked barriers by both groups. AG and PG (54% and 55%) highlighted suboptimal training in adolescent medicine. in Spain, nearly half of the centers have developed a structured transition program. Lack of training, time and insufficient resources are the main barriers for a successful transition.
SN 1130-0108
YR 2019
FD 2019
LK http://hdl.handle.net/10668/14565
UL http://hdl.handle.net/10668/14565
LA en
DS RISalud
RD Apr 8, 2025