RT Journal Article
T1 A Benchmarking Study Evaluating Axial Spondyloarthritis Burden in Spain and Other European Countries. Results from the Spanish Atlas and the European Map of Axial Spondyloarthritis (EMAS) Studies.
A1 Garrido-Cumbrera, Marco
A1 Gratacos, Jordi
A1 Collantes-Estevez, Eduardo
A1 Zarco-Montejo, Pedro
A1 Sastre, Carlos
A1 Christen, Laura
A1 Sanz-Gomez, Sergio
A1 Correa-Fernandez, Jose
A1 Navarro-Compan, Victoria
K1 Ankylosing spondylitis
K1 Axial spondyloarthritis
K1 Diagnostic delay
K1 Employment status
K1 Patient-reported outcomes
K1 Psychological distress
AB To compare the burden of disease in Spanish patients with axial spondyloarthritis (axSpA) vs other European countries (OEC). Data from 2846 unselected patients from the European Map of Axial Spondyloarthritis (EMAS) and the Atlas of Axial Spondyloarthritis in Spain (Atlas) were collected through online surveys. Comparative analysis was carried out between Spanish patients (2016) and patients from 12 OEC ( 2017-2018). Socio-demographic characteristics, life habits, and patient-reported outcomes (Bath Ankylosing Spondylitis Disease Activity Index 0-10, spinal stiffness 3-12, functional limitation 0-54, the 12-Item General Health Questionnaire [GHQ-12] for psychological distress 0-12) were compared. Chi-square and Mann-Whitney tests were used for qualitative and quantitative variables respectively. 680 (23.9%) Spanish axSpA patients were compared to 2166 axSpA patients (76.1%) from OEC. Compared to Spain, the OEC group had a higher percentage of females (64.1% vs 52.5%; P  Compared to European axSpA patients, Spanish patients experience a longer diagnostic delay and greater psychological distress. Being wrongly referred to orthopedic specialists and facing a more precarious labor scenario appear as possible causal factors, highlighting the need to increase the number of rheumatologists, the training of healthcare professionals, and improving axSpA patients' working conditions.
PB Wiley
YR 2021
FD 2021-06-21
LK http://hdl.handle.net/10668/18205
UL http://hdl.handle.net/10668/18205
LA en
NO Garrido-Cumbrera M, Gratacós J, Collantes-Estevez E, Zarco-Montejo P, Sastre C, Christen L, et al. A Benchmarking Study Evaluating Axial Spondyloarthritis Burden in Spain and Other European Countries. Results from the Spanish Atlas and the European Map of Axial Spondyloarthritis (EMAS) Studies. Int J Rheum Dis. 2021 Sep;24(9):1127-1136
DS RISalud
RD Apr 8, 2025