RT Journal Article
T1 Use of the ADAPTE method to develop a clinical guideline for the improvement of psychoses and schizophrenia care: Example of involvement and participation of patients and family caregivers
A1 Hurtado, María M.
A1 Quemada, Casta
A1 García-Herrera, José María
A1 Morales-Asencio, José Miguel
K1 ADAPTE methodology
K1 Clinical guidelines
K1 Patients involvement
K1 Psychoses
K1 Schizophrenia
K1 Guía de práctica clínica
K1 Participación del paciente
K1 Trastornos neurocognitivos
K1 Esquizofrenia
K1 Cuidadores
AB ntroduction: The aim of this study is to analyse different ways of participation dur ing the development of a clinical guideline to improve the early detection of psycho sis and to deploy a comprehensive treatment plan to improve prognosis and social integration. Materials and method: The clinical guideline was developed using the ADAPTE method with the participation of 40 authors and 80 external reviewers. The process was divided into three major phases: set up, adaptation and finalization. During adap tation and completion, a total of 44 patients and 18 family caregivers were involved.Results and conclusions: The different roles assumed by the patients and their family caregivers were described, depending on the panel in which they participated, with diverse grades of complexity: a user as author, integration of the results of qualitative research with the participation of local users and family caregivers, 13 users as indi vidual external reviewers and the participation of users and caregiver organizations in the external review. In the guideline, contributions from patients during the quali tative research were included in an innovative way, placing them just behind the rec ommendations. On the other hand, the results of the family caregivers’ study were included in a specific area of uncertainty. Further, the expressed point of view was considered as the collective demands of users and family caregivers’ organizations in the cost-benefit analysis made by the organizing committee. There were diverse ways to conduct direct patient participation during the guideline development, en suring that their individual experiences contributed significantly to the final version.
PB John Wiley & Sons Ltd
SN 1369-6513
YR 2021
FD 2021-02-23
LK http://hdl.handle.net/10668/4251
UL http://hdl.handle.net/10668/4251
LA en
NO Hurtado MM, Quemada C, García-Herrera JM, Morales-Asencio JM. Use of the ADAPTE method to develop a clinical guideline for the improvement of psychoses and schizophrenia care: Example of involvement and participation of patients and family caregivers. Health Expect. 2021 Apr;24(2):516-524
DS RISalud
RD Apr 6, 2025