RT Journal Article
T1 Defining a Standard Set of Health Outcomes for Patients With Squamous Cell Carcinoma of the Head and Neck in Spain.
A1 Arrazubi, Virginia
A1 Cajaraville, Gerardo
A1 Cantero, David
A1 Giralt, Jordi
A1 Mesia, Ricard
A1 Monje, Florencio
A1 Rueda, Antonio
A1 Sistiaga, Alexander
A1 Suarez, Jorge
A1 Mut, Alejandro
A1 Comellas, Marta
A1 Lizan, Luis
K1 Head and neck cancer
K1 Outcome measurement
K1 Patient centricity
K1 Patient-centered care
K1 Patient-reported outcomes
K1 Quality of life
AB A systematic, standardized collection of health outcomes during patient treatment and follow-up, relevant from the perspective of all stakeholders, is a crucial step toward effective and efficient disease management. This project aimed to define a standard set of health outcomes for patients with squamous cell carcinoma of the head and neck (SCCHN). The project was led and coordinated by a scientific committee (SC). It comprised: (1) a literature review (to identify variables used during SCCHN management); (2) 1st-SC meeting (to select the variables for presentation during nominal groups-NG); (3) five NG (n=42 experts) and four interviews with patients (to reach consensus on the variables for inclusion); and (4) final-SC meeting (to review the results of NG ensuring consensus on the variables where consensus was not reached). Experts agreed to include the following variables in the standard set: treatment-related (treatment intent and type, response to treatment, treatment toxicity/complication, treatment completion), degree of health (performance status, patient-reported health status, pain, dysphonia, feeding and speech limitations, body image alteration, tracheotomy), survival (overall and progression-free survival, cause of death), nutritional (weight, nutritional intervention), other variables (smoking status, alcohol consumption, patient satisfaction with aftermath care, employment status), and case-mix variables (demographic, tumor-related, clinical and nutritional factors). This project may pave the way to standardizing the collection of health outcomes in SCCHN and promote the incorporation of patients' perspective in its management. The information provided through the systematic compilation of this standard set may define strategies to achieve high-quality, patient-centered care.
PB Frontiers Research Foundation
SN 2234-943X
YR 2022
FD 2022-01-24
LK http://hdl.handle.net/10668/20677
UL http://hdl.handle.net/10668/20677
LA en
NO Arrazubi V, Cajaraville G, Cantero D, Giralt J, Mesia R, Monje F, et al. R. Defining a Standard Set of Health Outcomes for Patients With Squamous Cell Carcinoma of the Head and Neck in Spain. Front Oncol. 2022 Jan 24;11:747520
DS RISalud
RD Apr 19, 2025