RT Journal Article
T1 Travel burden and clinical presentation of retinoblastoma: analysis of 1024 patients from 43 African countries and 518 patients from 40 European countries.
A1 Fabian, Ido Didi
A1 Stacey, Andrew W
A1 Foster, Allen
A1 Kivelä, Tero T
A1 Munier, Francis L
A1 Keren-Froim, Naama
A1 Gomel, Nir
A1 Cassoux, Nathalie
A1 Sagoo, Mandeep S
A1 Reddy, M Ashwin
A1 Harby, Lamis Al
A1 Zondervan, Marcia
A1 Bascaran, Covadonga
A1 Abdallah, Elhassan
A1 Abdullahi, Shehu U
A1 Boubacar, Sahadatou Adamou
A1 Ademola-Popoola, Dupe S
A1 Adio, Adedayo
A1 Aghaji, Ada E
A1 Portabella, Silvia Alarcón
A1 Alfa Bio, Amadou I
A1 Ali, Amany M
A1 Alia, Donjeta B
A1 All-Eriksson, Charlotta
A1 Almeida, Argentino A
A1 Alsawidi, Khalifa M
A1 Antonino, Romanzo
A1 Astbury, Nicholas J
A1 Atsiaya, Rose
A1 Balaguer, Julia
A1 Balwierz, Walentyna
A1 Barranco, Honorio
A1 Popovic, Maja Beck
A1 Benmiloud, Sarra
A1 Guebessi, Nissrine Bennani
A1 Berete, Rokia C
A1 Biddulph, Shelley J
A1 Biewald, Eva M
A1 Blum, Sharon
A1 Bobrova, Nadia
A1 Boehme, Marianna
A1 Bornfeld, Norbert
A1 Bouda, Gabrielle C
A1 Bouguila, Hédi
A1 Boumedane, Amaria
A1 Brichard, Bénédicte G
A1 L, Michael Capra
A1 Castela, Guilherme
A1 Català-Mora, Jaume
A1 Chantada, Guillermo L
A1 Chernodrinska, Violeta S
A1 Chiwanga, Faraja S
A1 Cieslik, Krzysztof
A1 Comsa, Codruta
A1 Correa Llano, Maria G
A1 Csóka, Monika
A1 Da Gama, Isac V
A1 Davidson, Alan
A1 Potter, Patrick De
A1 Desjardins, Laurence
A1 Dragomir, Monica D
A1 Bruyn, Magritha Du
A1 Kettani, Asmaa El
A1 Elbahi, Amal M
A1 Elgalaly, Dina
A1 Elhaddad, Alaa M
A1 Ali Elhassan, Moawia M
A1 Elzembely, Mahmoud M
A1 Essuman, Vera A
A1 Evina, Ted Grimbert A
A1 Fasina, Oluyemi
A1 Fernández-Teijeiro, Ana
A1 Gandiwa, Moira
A1 Aldana, David García
A1 Geel, Jennifer A
A1 Gizachew, Zelalem
A1 Gregersen, Pernille A
A1 Guedenon, Koffi M
A1 Hadjistilianou, Theodora
A1 Hassan, Sadiq
A1 Hederova, Stanislava
A1 Hessissen, Laila
A1 Hordofa, Diriba F
A1 Hummlen, Marlies
A1 Husakova, Kristina
A1 Ida, Russo
A1 Ilic, Vesna R
A1 Jenkinson, Helen
A1 Amani Kabesha, Theophile B
A1 Kabore, Rolande L
A1 Kalinaki, Abubakar
A1 Kapelushnik, Noa
A1 Kardava, Tamar
A1 Kemilev, Pavlin Kroumov
A1 Kepak, Tomas
A1 Khotenashvili, Zaza
A1 Klett, Artur
A1 Kosh Komba Palet, Jess Elio
A1 Krivaitiene, Dalia
A1 Kruger, Mariana
A1 Kyara, Alice
A1 Lachmann, Eva S
A1 Latinović, Slobodanka
A1 Lecuona, Karin
A1 Lukamba, Robert M
A1 Lumbroso, Livia
A1 Lysytsia, Lesia
A1 Maka, Erika
A1 Makan, Mayuri
A1 Manda, Chatonda
A1 Begue, Nieves Martín
A1 Matende, Ibrahim O
A1 Matua, Marchelo
A1 Mayet, Ismail
A1 Mbumba, Freddy B
A1 Mengesha, Aemero A
A1 Midena, Edoardo
A1 Mndeme, Furahini G
A1 Mohamedani, Ahmed A
A1 Moll, Annette C
A1 Moreira, Claude
A1 Msina, Mchikirwa S
A1 Msukwa, Gerald
A1 Muma, Kangwa I
A1 Murgoi, Gabriela
A1 Musa, Kareem O
A1 Mustak, Hamzah
A1 Muyen, Okwen M
A1 Naidu, Gita
A1 Naumenko, Larisa
A1 Ndoye Roth, Paule Aïda
A1 Neroev, Vladimir
A1 Nikitovic, Marina
A1 Nkanga, Elizabeth D
A1 Nkumbe, Henry
A1 Nyaywa, Mutale
A1 Obono-Obiang, Ghislaine
A1 Oguego, Ngozi C
A1 Olechowski, Andrzej
A1 Oscar, Alexander Hugo
A1 Osei-Bonsu, Peter
A1 Painter, Sally L
A1 Paintsil, Vivian
A1 Paiva, Luisa
A1 Papyan, Ruzanna
A1 Parrozzani, Raffaele
A1 Parulekar, Manoj
A1 Pawinska-Wasikowska, Katarzyna
A1 Perić, Sanja
A1 Philbert, Remezo
A1 Pochop, Pavel
A1 Polyakov, Vladimir G
A1 Pompe, Manca T
A1 Pons, Jonathan J
A1 Raobela, Léa
A1 Renner, Lorna A
A1 Reynders, David
A1 Ribadu, Dahiru
A1 Riheia, Mussagy M
A1 Ritter-Sovinz, Petra
A1 Saakyan, Svetlana
A1 Said, Azza Ma
A1 Román Pacheco, Sonsoles San
A1 Scanlan, Trish A
A1 Schoeman, Judy
A1 Seregard, Stefan
A1 Sherief, Sadik T
A1 Cheikh, Sidi Sidi
A1 Silva, Sónia
A1 Sorochynska, Tetyana
A1 Ssali, Grace
A1 Stathopoulos, Christina
A1 Kranjc, Branka Stirn
A1 Stones, David K
A1 Svojgr, Karel
A1 Sylla, Fatoumata
A1 Tamamyan, Gevorg
A1 Tandili, Alketa
A1 Tateshi, Bekim
A1 Theophile, Tuyisabe
A1 Traoré, Fousseyni
A1 Tyau-Tyau, Harba
A1 Umar, Ali B
A1 Urbak, Steen F
A1 Ushakova, Tatiana L
A1 Valeina, Sandra
A1 Hoefen Wijsard, Milo van
A1 Veleva-Krasteva, Nevyana V
A1 Viksnins, Maris
A1 Wackernagel, Werner
A1 Waddell, Keith
A1 Wade, Patricia D
A1 Wali Nigeria, Amina H
A1 Wime, Amelia Dc
A1 Dod, Charlotte Wolley
A1 Yanga, Jenny M
A1 Yarovaya, Vera A
A1 Yarovoy, Andrey A
A1 Zein, Ekhtelbenina
A1 Sharabi, Shirley
A1 Zhilyaeva, Katsiaryna
A1 Ziko, Othman Ao
A1 Bowman, Richard
K1 Epidemiology
K1 Neoplasia
AB The travel distance from home to a treatment centre, which may impact the stage at diagnosis, has not been investigated for retinoblastoma, the most common childhood eye cancer. We aimed to investigate the travel burden and its impact on clinical presentation in a large sample of patients with retinoblastoma from Africa and Europe. A cross-sectional analysis including 518 treatment-naïve patients with retinoblastoma residing in 40 European countries and 1024 treatment-naïve patients with retinoblastoma residing in 43 African countries. Capture rate was 42.2% of expected patients from Africa and 108.8% from Europe. African patients were older (95% CI -12.4 to -5.4, p Fewer than half the expected number of patients with retinoblastoma presented to African referral centres in 2017, suggesting poor awareness or other barriers to access. Despite the relatively shorter distance travelled by African patients, they presented with later-stage disease. Health education about retinoblastoma is needed for carers and health workers in Africa in order to increase capture rate and promote early referral.
YR 2020
FD 2020-09-15
LK https://hdl.handle.net/10668/27582
UL https://hdl.handle.net/10668/27582
LA en
DS RISalud
RD Apr 8, 2025