RT Journal Article T1 EpidemIBD: rationale and design of a large-scale epidemiological study of inflammatory bowel disease in Spain. A1 Chaparro, Maria A1 Barreiro-de Acosta, Manuel A1 Benitez, Jose Manuel A1 Cabriada, Jose Luis A1 Casanova, Maria Jose A1 Ceballos, Daniel A1 Esteve, Maria A1 Fernandez, Hipolito A1 Ginard, Daniel A1 Gomollon, Fernando A1 Lorente, Rufo A1 Nos, Pilar A1 Riestra, Sabino A1 Rivero, Montserrat A1 Robledo, Pilar A1 Rodríguez, Cristina A1 Sicilia, Beatriz A1 Torrella, Emilio A1 Garre, Ana A1 Garcia-Esquinas, Esther A1 Rodriguez-Artalejo, Fernando A1 Gisbert, Javier P K1 Crohn’s disease K1 Epidemiology K1 Incidence K1 Inflammatory bowel disease K1 Ulcerative colitis AB Inflammatory bowel disease (IBD) is associated with a considerable burden to the patient and society. However, current data on IBD incidence and burden are limited because of the paucity of nationwide epidemiological studies, heterogeneous designs, and a low number of participating centers and sample size. The EpidemIBD study is a large-scale investigation to provide an accurate assessment of the incidence of IBD in Spain, as well as treatment patterns and outcomes. This multicenter, population-based incidence cohort study included patients aged >18 years with IBD (Crohn's disease, ulcerative colitis, or unclassified IBD) diagnosed during 2017 in 108 hospitals in Spain, covering 50% of the Spanish population. Each participating patient will attend 10 clinic visits during 5 years of follow up. Demographic data, IBD characteristics and family history, complications, treatments, surgeries, and hospital admissions will be recorded. The EpidemIBD study is the first large-scale nationwide study to investigate the incidence of IBD in Spain. Enrollment is now completed and 3627 patients are currently being followed up. The study has been designed to overcome many of the limitations of previous European studies into IBD incidence by prospectively recruiting a large number of patients from all regions of Spain. In addition to epidemiological information about the burden of IBD, the 5-year follow-up period will also provide information on treatment patterns, and the natural history and financial burden of IBD. PB Sage Publications SN 1756-283X YR 2019 FD 2019-03-25 LK http://hdl.handle.net/10668/14125 UL http://hdl.handle.net/10668/14125 LA en NO Chaparro M, Barreiro-de Acosta M, Benítez JM, Cabriada JL, Casanova MJ, Ceballos D, et al. EpidemIBD: rationale and design of a large-scale epidemiological study of inflammatory bowel disease in Spain. Therap Adv Gastroenterol. 2019 May 21;12:1756284819847034 DS RISalud RD Apr 6, 2025