TY  - JOUR
AU  - Mayhew, Anna G
AU  - James, Meredith K
AU  - Moore, Ursula
AU  - Sutherland, Helen
AU  - Jacobs, Marni
AU  - Feng, Jia
AU  - Lowes, Linda Pax
AU  - Alfano, Lindsay N
AU  - Muni Lofra, Robert
AU  - Rufibach, Laura E
AU  - Rose, Kristy
AU  - Duong, Tina
AU  - Bello, Luca
AU  - Pedrosa-Hernández, Irene
AU  - Holsten, Scott
AU  - Sakamoto, Chikako
AU  - Canal, Aurélie
AU  - Sánchez-Aguilera Práxedes, Nieves
AU  - Thiele, Simone
AU  - Siener, Catherine
AU  - Vandevelde, Bruno
AU  - DeWolf, Brittney
AU  - Maron, Elke
AU  - Gordish-Dressman, Heather
AU  - Hilsden, Heather
AU  - Guglieri, Michela
AU  - Hogrel, Jean-Yves
AU  - Blamire, Andrew M
AU  - Carlier, Pierre G
AU  - Spuler, Simone
AU  - Day, John W
AU  - Jones, Kristi J
AU  - Bharucha-Goebel, Diana X
AU  - Salort-Campana, Emmanuelle
AU  - Pestronk, Alan
AU  - Walter, Maggie C
AU  - Paradas, Carmen
AU  - Stojkovic, Tanya
AU  - Mori-Yoshimura, Madoka
AU  - Bravver, Elena
AU  - Díaz-Manera, Jordi
AU  - Pegoraro, Elena
AU  - Mendell, Jerry R
AU  - Straub, Volker
PY  - 2022
DO  - 10.3389/fneur.2022.828525
SN  - 1664-2295
UR  - http://hdl.handle.net/10668/20643
T2  - Frontiers in neurology
AB  - Dysferlinopathy is a muscular dystrophy with a highly variable functional disease progression in which the relationship of function to some patient reported outcome measures (PROMs) has not been previously reported. This analysis aims to identify the...
LA  - en
KW  - PROMs
KW  - clinical outcome assessments
KW  - dysferlinopathy
KW  - limb girdle muscular dystrophy
KW  - quality of life
TI  - Assessing the Relationship of Patient Reported Outcome Measures With Functional Status in Dysferlinopathy: A Rasch Analysis Approach.
TY  - research article
VL  - 13
ER  -