RT Journal Article
T1 Development and electronic validation of the revised Cystic Fibrosis Questionnaire (CFQ-R Teen/Adult): New tool for monitoring psychosocial health in CF.
A1 Sole, Amparo
A1 Olveira, Casilda
A1 Perez, Ines
A1 Hervas, David
A1 Valentine, Vincent
A1 Baca-Yepez, Anick N
A1 Olveira, Gabriel
A1 Quittner, Alexandra L
K1 Cystic Fibrosis Questionnaire Revised
K1 Cystic fibrosis
K1 Diagnostic tool
K1 Patient reported outcomes
AB The Cystic Fibrosis Questionnaire-Revised (CFQ-R+14) is a disease-specific, health-related quality of life instrument for cystic fibrosis (CF) patients ≥14years. We have developed a Spanish electronic version of the CFQ-R (e-CFQ-R+14 Spain). Our aim was to compare the paper and electronic versions and to validate the electronic version. Fifty CF patients completed the study. All answered the paper and electronic versions on day 1 and repeated the e-CFQR version 15days later. Concordance between the electronic and paper copy versions was high, with correlations above 0.9 in all domains. Test-retest reliability of the e-CFQ-R results was strong, with coefficients ranging from 0.8 to 0.9. The e-CFQ-R version is reliable and valid and can replace the paper copy, thus simplifying the assessment of quality of life. It also provides immediate results with no errors in scoring. It is a useful new tool in CF care.
PB Elsevier
YR 2017
FD 2017-11-20
LK http://hdl.handle.net/10668/11823
UL http://hdl.handle.net/10668/11823
LA en
NO Solé A, Olveira C, Pérez I, Hervás D, Valentine V, Baca Yepez AN, et al. Development and electronic validation of the revised Cystic Fibrosis Questionnaire (CFQ-R Teen/Adult): New tool for monitoring psychosocial health in CF. J Cyst Fibros. 2018 Sep;17(5):672-679
NO This study received funding from the CV Micellium Foundation grant 01/2016 and the Gilead grant 204008723/ 2015 Pharmaceutical company.
DS RISalud
RD Apr 19, 2025