TY  - JOUR
AU  - Aledo-Serrano, Ángel
AU  - Mingorance, Ana
AU  - Villanueva, Vicente
AU  - García-Peñas, Juan José
AU  - Gil-Nagel, Antonio
AU  - Boronat, Susana
AU  - Aibar, JoséÁngel
AU  - Cámara, Silvia
AU  - Yániz, María José
AU  - Aras, Luis Miguel
AU  - Blanco, Bárbara
AU  - Sánchez-Carpintero, Rocío
PY  - 2022
DO  - 10.3389/fneur.2022.975034
SN  - 1664-2295
UR  - http://hdl.handle.net/10668/20647
T2  - Frontiers in neurology
AB  - The appropriate management of patients with Dravet Syndrome (DS) is challenging, given the severity of symptoms and the burden of the disease for patients and caregivers. This study aimed to identify, through a qualitative methodology and a Delphi...
LA  - en
KW  - SCN1A
KW  - caregivers
KW  - developmental and epileptic encephalopathies
KW  - epilepsy
KW  - genetic epilepsy
KW  - neurodevelopment
KW  - patient-reported outcomes
TI  - The Charlotte Project: Recommendations for patient-reported outcomes and clinical parameters in Dravet syndrome through a qualitative and Delphi consensus study.
TY  - research article
VL  - 13
ER  -