TY  - JOUR
AU  - Valdivielso, Pedro
AU  - Jacinto, Marta
AU  - Devernois, Guillemette
AU  - Laplana, Jorge
AU  - García-Fernández, Maria
AU  - Martin, Ludovic
PY  - 2021
DO  - 10.1186/s13023-021-01703-w
UR  - http://hdl.handle.net/10668/4576
T2  - Orphanet Journal of Rare Diseases
AB  - Patients have been showing a growing interest in taking active participation in decision making, and having the opportunity to drive clinical investigation. This is more common for patients who have a rare disease than for those with more prevalent...
LA  - en
PB  - BioMed Central, Springer Nature
KW  - Connective tissue
KW  - Rare disease
KW  - Spain
KW  - Associations
KW  - Calcification
KW  - Tejido conectivo
KW  - Enfermedades raras
KW  - España
KW  - Asociación
KW  - Calcificación fisiológica
KW  - Medical Subject Headings::Geographical Locations::Geographic Locations::Historical Geographic Locations::European Union
KW  - Medical Subject Headings::Geographical Locations::Geographic Locations::Europe::France
KW  - Medical Subject Headings::Organisms::Eukaryota::Animals::Chordata::Vertebrates::Mammals::Primates::Haplorhini::Catarrhini::Hominidae::Humans
KW  - Medical Subject Headings::Geographical Locations::Geographic Locations::Europe::Portugal
KW  - Medical Subject Headings::Geographical Locations::Geographic Locations::Europe::Spain
KW  - Medical Subject Headings::Anatomy::Tissues::Connective Tissue
KW  - Medical Subject Headings::Diseases::Pathological Conditions, Signs and Symptoms::Pathologic Processes::Disease Attributes::Rare Diseases
KW  - Medical Subject Headings::Psychiatry and Psychology::Psychological Phenomena and Processes::Mental Processes::Thinking::Decision Making
TI  - Role of patients associations in connective tissue calcifiying diseases: a position statement from EuroSoftCalc.Net group
TY  - research article
ER  -