RT Journal Article
T1 [A New Paradigm in Health Research: FAIR Data (Findable, Accessible, Interoperable, Reusable)].
T2 Um Novo Paradigma em Investigação em Saúde: Dados FAIR (Localizáveis, Acessíveis, Interoperáveis, Reutilizáveis).
A1 Almada, Marta
A1 Midão, Luis
A1 Portela, Diana
A1 Dias, Ines
A1 Nuñez-Benjumea, Francisco J
A1 Parra-Calderon, Carlos L
A1 Costa, Elisio
K1 Databases, Factual
K1 Health Information Management
K1 Health Information Systems
K1 Information Dissemination
K1 Metadata
K1 Research
AB The digital era, that we are living nowadays, is transforming health, health care models and services, and the role of society in this new reality. We currently have a large amount of stored health data, including clinical, biometric, and scientific research data. Nonetheless, its potential is not being fully exploited. It is essential to foster the sharing and reuse of this data not only in research but also towards the development of health technologies in order to improve health care efficiency, as well as products, services or digital health apps, to promote preventive and individualized medicine and to empower citizens in health literacy and self-management. In this sense, the FAIR concept has emerged, which implies that health data is findable, accessible, shared and reusable, facilitating interoperability between systems, ensuring the protection of personal and sensitive data. In this paper we review the FAIR concept, 'FAIRification' process, FAIR data versus open access data, ethical issues and the general data protection regulation, and digital health and citizen science.
PB Ordem dos Medicos
YR 2020
FD 2020-12-02
LK http://hdl.handle.net/10668/17042
UL http://hdl.handle.net/10668/17042
LA pt
NO Almada M, Midão L, Portela D, Dias I, Núñez-Benjumea FJ, Parra-Calderón CL, et al. Um Novo Paradigma em Investigação em Saúde: Dados FAIR (Localizáveis, Acessíveis, Interoperáveis, Reutilizáveis) [A New Paradigm in Health Research: FAIR Data (Findable, Accessible, Interoperable, Reusable)]. Acta Med Port. 2020 Dec 2;33(12):828-834. Portuguese.
DS RISalud
RD Apr 7, 2025