RT Journal Article
T1 The Cardiomyopathy Registry of the EURObservational Research Programme of the European Society of Cardiology: baseline data and contemporary management of adult patients with cardiomyopathies.
A1 Charron, Philippe
A1 Elliott, Perry M
A1 Gimeno, Juan R
A1 Caforio, Alida L P
A1 Kaski, Juan Pablo
A1 Tavazzi, Luigi
A1 Tendera, Michal
A1 Maupain, Carole
A1 Laroche, Cecile
A1 Rubis, Pawel
A1 Jurcut, Ruxandra
A1 Calo, Leonardo
A1 Heliö, Tiina M
A1 Sinagra, Gianfranco
A1 Zdravkovic, Marija
A1 Kavoliuniene, Aušra
A1 Felix, Stephan B
A1 Grzybowski, Jacek
A1 Losi, Maria-Angela
A1 Asselbergs, Folkert W
A1 Garcia-Pinilla, Jose Manuel
A1 Salazar-Mendiguchia, Joel
A1 Mizia-Stec, Katarzyna
A1 Maggioni, Aldo P
A1 EORP Cardiomyopathy Registry Investigators, 
K1 Valor
K1 Lang
K1 Defibrillators
K1 Cardiomyopathy, Restrictive
AB The Cardiomyopathy Registry of the EURObservational Research Programme is a prospective, observational, and multinational registry of consecutive patients with four cardiomyopathy subtypes: hypertrophic cardiomyopathy (HCM), dilated cardiomyopathy (DCM), arrhythmogenic right ventricular cardiomyopathy (ARVC), and restrictive cardiomyopathy (RCM). We report the baseline characteristics and management of adults enrolled in the registry. A total of 3208 patients were enrolled by 69 centres in 18 countries [HCM (n = 1739); DCM (n = 1260); ARVC (n = 143); and RCM (n = 66)]. Differences between cardiomyopathy subtypes (P  By providing contemporary observational data on characteristics and management of patients with cardiomyopathies, the registry provides a platform for the evaluation of guideline implementation. Potential gaps with existing recommendations are discussed as well as some suggestions for improvement of health care provision in Europe.
PB Oxford University Press
YR 2018
FD 2018-01-09
LK http://hdl.handle.net/10668/12058
UL http://hdl.handle.net/10668/12058
LA en
NO Charron P, Elliott PM, Gimeno JR, Caforio ALP, Kaski JP, Tavazzi L, et al. The Cardiomyopathy Registry of the EURObservational Research Programme of the European Society of Cardiology: baseline data and contemporary management of adult patients with cardiomyopathies. Eur Heart J. 2018 May 21;39(20):1784-1793
NO Data collection was conducted by the EORP department from the ESC by Rachid Mir Hassaine as Clinical Project Manager, Emanuela Fiorucci, Myriam Glemot, Elin Folkesson Lefrancq and Patti-Ann McNeill as Project Officers, Mare`me Konte´ and Sebastien Authier as Data Managers. Statistical analyses were performed by Ce´cile Laroche. Overall activities were co-ordinated and supervised by Dr Aldo P. Maggioni (EORP Scientific Co-ordinator). All investigators are listed in the Supplementary material online, Appendix 1.
NO FundingSince the start of EORP, the following companies have supported theprogramme: Abbott Vascular Int. (2011–2014), Amgen Cardiovascular(2009–2018), AstraZeneca (2014–2017), Bayer AG (2009–2018),Boehringer Ingelheim (2009–2019), Boston Scientific (2009–2012), TheBristol Myers Squibb and Pfizer Alliance (2011–2019), Daiichi SankyoEurope GmbH (2011–2020), The Alliance Daiichi Sankyo Europe GmbHand Eli Lilly and Company (2014–2017), Edwards (2016–2019), GedeonRichter Plc. (2014–2016), Menarini Int. Op. (2009–2012), MSD-Merck &Co. (2011–2014), Novartis Pharma AG (2014–2017), ResMed (2014–2016), Sanofi (2009–2011), SERVIER (2009–2018).
DS RISalud
RD Apr 10, 2025