[Follow-up protocol of patients with cystic fibrosis diagnosed by newborn screening].
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2018-12-28
Authors
Gartner, Silvia
Mondéjar-López, Pedro
Asensio de la Cruz, Óscar
Grupo de Trabajo de Fibrosis Quística de la Sociedad Española de Neumología Pediátrica
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Abstract
Newborn screening (NBS) for cystic fibrosis (CF) is well-established in many countries and provides the opportunity for an early diagnosis and treatment before the development of irreversible structural lung damage. In 1999, Catalonia, Castilla-León, and the Balearic Islands started the NBS programme for CF. In the last 10 years its implementation rapidly spread and all the autonomies offer the NBS programme for CF since 2015. There are many different strategies across Spain. It is believed that it is very opportune to have an updated and consensual guide for the diagnosis, follow-up, and treatment of patients diagnosed by neonatal screening.
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MeSH Terms
Aftercare
Cystic Fibrosis
Humans
Infant, Newborn
Neonatal Screening
Practice Guidelines as Topic
Spain
Cystic Fibrosis
Humans
Infant, Newborn
Neonatal Screening
Practice Guidelines as Topic
Spain
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Keywords
Cribado neonatal, Cystic fibrosis, Fibrosis quística, Guidelines for diagnosis and treatment, Newborn screening, Protocolo de diagnóstico y seguimiento