Publication: Nutrición parenteral domiciliaria en España 2017. Informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA.
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Identifiers
Date
2018-11-02
Authors
Wanden-Berghe-Lozano, Carmina
Pereira-Cunill, Jose Luis
Cuerda-Compes, Cristina
Ramos-Boluda, Esther
Maiz-Jimenez, Maria Irene
Gomez-Candela, Carmen
Virgili-Casas, Nuria
Burgos-Pelaez, Rosa
Perez-de-la-Cruz, Antonio
Penacho-Lazaro, M ª Angeles
Advisors
Journal Title
Journal ISSN
Volume Title
Publisher
Aula Medica Ediciones
Abstract
Objetivo: comunicar los datos de nutrición parenteral domiciliaria (NPD) obtenidos del registro del grupo NADYA-SENPE (www.nadya-senpe. com) del año 2017. Material y métodos: análisis descriptivo de los datos recogidos de pacientes adultos y pediátricos con NPD en el registro NADYA-SENPE desde el 1 de enero al 31 de diciembre de 2017. Resultados: se registraron 308 pacientes (54,5% mujeres), 38 niños y 270 adultos, procedentes de 45 hospitales españoles, en total 312 episodios, lo que representa una tasa de prevalencia de 6,61 pacientes/millón de habitantes/año 2017. El diagnóstico más frecuente en adultos fue “oncológico paliativo” (25,6%), seguido de otros”. En niños fue la enfermedad de Hirschsprung, con seis casos (15,8%). El primer motivo de indicación fue síndrome de intestino corto tanto en niños (55,3%) como en adultos (33,7%). El tipo de catéter más utilizado fue el tunelizado tanto en niños (74,3%) como en adultos (38,2%). Finalizaron 81 episodios; la causa más frecuente fue el fallecimiento (62,9%) y que pasaron a vía oral (34,7%). Conclusiones: se mantiene el incremento progresivo de centros y profesionales colaboradores en el registro de pacientes que reciben NPD. Las principales indicaciones de NPD y de motivo de finalización se mantienen estables
Aim: to communicate HPN data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2017. Material and methods: descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2017 to December 31st, 2017. Results: there were 308 patients from 45 Spanish hospitals (54.5% women), 38 children and 270 adults, with 3,012 episodes, which represent a prevalence rate of 6.61 patients/million inhabitants/year 2017. The most frequent diagnosis in adults was “palliative cancer” (25.6%), followed by “others”. In children, it was Hirschsprung’s disease with six cases (15.8%). The first indication was short bowel syndrome in both children (55.3%) and adults (33.7%). The most frequently used type of catheter was tunneled in both children (73.4%) and adults (38.2%). Ending 81 episodes, the most frequent cause was death (62.9%) and transition to oral feeding (34.7%). Conclusions: the progressive increase of collaborating centers and professionals in the registry of patients receiving NPD is maintained. The main indications of HPN and the motive for ending have remained stable.
Aim: to communicate HPN data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2017. Material and methods: descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2017 to December 31st, 2017. Results: there were 308 patients from 45 Spanish hospitals (54.5% women), 38 children and 270 adults, with 3,012 episodes, which represent a prevalence rate of 6.61 patients/million inhabitants/year 2017. The most frequent diagnosis in adults was “palliative cancer” (25.6%), followed by “others”. In children, it was Hirschsprung’s disease with six cases (15.8%). The first indication was short bowel syndrome in both children (55.3%) and adults (33.7%). The most frequently used type of catheter was tunneled in both children (73.4%) and adults (38.2%). Ending 81 episodes, the most frequent cause was death (62.9%) and transition to oral feeding (34.7%). Conclusions: the progressive increase of collaborating centers and professionals in the registry of patients receiving NPD is maintained. The main indications of HPN and the motive for ending have remained stable.
Description
MeSH Terms
Adult
Child
Female
Hirschsprung Disease
Humans
Male
Neoplasms
Palliative Care
Parenteral Nutrition, Home
Registries
Short Bowel Syndrome
Spain
Child
Female
Hirschsprung Disease
Humans
Male
Neoplasms
Palliative Care
Parenteral Nutrition, Home
Registries
Short Bowel Syndrome
Spain
DeCS Terms
Sistema de registros
Diagnóstico
Muerte
Neoplasias
Catéteres
Síndrome del intestino corto
Diagnóstico
Muerte
Neoplasias
Catéteres
Síndrome del intestino corto
CIE Terms
Keywords
Área de Gestión Sanitaria Sur de Sevilla, Nutrición parenteral domiciliaria, Nutrición parenteral, Soporte nutricional, Cuidados domiciliarios, Registros, Epidemiología, Home parenteral nutrition, Parenteral nutrition, Nutritional support, Home care services, Records, Epidemiology
Citation
Wanden-Berghe Lozano C, Pereira Cunill JL, Cuerda Compes C, Ramos Boluda E, Maiz Jiménez MI, Gómez Candela C, et al. [Home and Ambulatory Artificial Nutrition (NADYA) Report. Home Parenteral Nutrition in Spain, 2017]. Nutr Hosp. 2018 Dec 3;35(6):1491-1496. Spanish