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The Cardiomyopathy Registry of the EURObservational Research Programme of the European Society of Cardiology: baseline data and contemporary management of adult patients with cardiomyopathies.

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dc.contributor.authorCharron, Philippe
dc.contributor.authorElliott, Perry M
dc.contributor.authorGimeno, Juan R
dc.contributor.authorCaforio, Alida L P
dc.contributor.authorKaski, Juan Pablo
dc.contributor.authorTavazzi, Luigi
dc.contributor.authorTendera, Michal
dc.contributor.authorMaupain, Carole
dc.contributor.authorLaroche, Cecile
dc.contributor.authorRubis, Pawel
dc.contributor.authorJurcut, Ruxandra
dc.contributor.authorCalo, Leonardo
dc.contributor.authorHeliö, Tiina M
dc.contributor.authorSinagra, Gianfranco
dc.contributor.authorZdravkovic, Marija
dc.contributor.authorKavoliuniene, Aušra
dc.contributor.authorFelix, Stephan B
dc.contributor.authorGrzybowski, Jacek
dc.contributor.authorLosi, Maria-Angela
dc.contributor.authorAsselbergs, Folkert W
dc.contributor.authorGarcia-Pinilla, Jose Manuel
dc.contributor.authorSalazar-Mendiguchia, Joel
dc.contributor.authorMizia-Stec, Katarzyna
dc.contributor.authorMaggioni, Aldo P
dc.contributor.authorEORP Cardiomyopathy Registry Investigators
dc.date.accessioned2023-01-25T10:03:08Z
dc.date.available2023-01-25T10:03:08Z
dc.date.issued2018-01-09
dc.description.abstractThe Cardiomyopathy Registry of the EURObservational Research Programme is a prospective, observational, and multinational registry of consecutive patients with four cardiomyopathy subtypes: hypertrophic cardiomyopathy (HCM), dilated cardiomyopathy (DCM), arrhythmogenic right ventricular cardiomyopathy (ARVC), and restrictive cardiomyopathy (RCM). We report the baseline characteristics and management of adults enrolled in the registry. A total of 3208 patients were enrolled by 69 centres in 18 countries [HCM (n = 1739); DCM (n = 1260); ARVC (n = 143); and RCM (n = 66)]. Differences between cardiomyopathy subtypes (P  By providing contemporary observational data on characteristics and management of patients with cardiomyopathies, the registry provides a platform for the evaluation of guideline implementation. Potential gaps with existing recommendations are discussed as well as some suggestions for improvement of health care provision in Europe.
dc.description.sponsorshipData collection was conducted by the EORP department from the ESC by Rachid Mir Hassaine as Clinical Project Manager, Emanuela Fiorucci, Myriam Glemot, Elin Folkesson Lefrancq and Patti-Ann McNeill as Project Officers, Mare`me Konte´ and Sebastien Authier as Data Managers. Statistical analyses were performed by Ce´cile Laroche. Overall activities were co-ordinated and supervised by Dr Aldo P. Maggioni (EORP Scientific Co-ordinator). All investigators are listed in the Supplementary material online, Appendix 1.
dc.description.sponsorshipFunding Since the start of EORP, the following companies have supported the programme: Abbott Vascular Int. (2011–2014), Amgen Cardiovascular (2009–2018), AstraZeneca (2014–2017), Bayer AG (2009–2018), Boehringer Ingelheim (2009–2019), Boston Scientific (2009–2012), The Bristol Myers Squibb and Pfizer Alliance (2011–2019), Daiichi Sankyo Europe GmbH (2011–2020), The Alliance Daiichi Sankyo Europe GmbH and Eli Lilly and Company (2014–2017), Edwards (2016–2019), Gedeon Richter Plc. (2014–2016), Menarini Int. Op. (2009–2012), MSD-Merck & Co. (2011–2014), Novartis Pharma AG (2014–2017), ResMed (2014– 2016), Sanofi (2009–2011), SERVIER (2009–2018).
dc.description.versionSí
dc.identifier.citationCharron P, Elliott PM, Gimeno JR, Caforio ALP, Kaski JP, Tavazzi L, et al. The Cardiomyopathy Registry of the EURObservational Research Programme of the European Society of Cardiology: baseline data and contemporary management of adult patients with cardiomyopathies. Eur Heart J. 2018 May 21;39(20):1784-1793
dc.identifier.doi10.1093/eurheartj/ehx819
dc.identifier.essn1522-9645
dc.identifier.pmid29378019
dc.identifier.unpaywallURLhttps://academic.oup.com/eurheartj/article-pdf/39/20/1784/24836597/ehx819.pdf
dc.identifier.urihttp://hdl.handle.net/10668/12058
dc.issue.number20
dc.journal.titleEuropean heart journal
dc.journal.titleabbreviationEur Heart J
dc.language.isoen
dc.organizationHospital Universitario Virgen de la Victoria
dc.organizationInstituto de Investigación Biomédica de Málaga-IBIMA
dc.page.number10
dc.provenanceRealizada la curación de contenido 20/09/2024
dc.publisherOxford University Press
dc.pubmedtypeJournal Article
dc.pubmedtypeMulticenter Study
dc.pubmedtypeObservational Study
dc.pubmedtypeResearch Support, Non-U.S. Gov't
dc.relation.publisherversionhttps://doi.org/10.1093/eurheartj/ehx819
dc.rights.accessRightsrestricted access
dc.subjectValor
dc.subjectLang
dc.subjectDefibrillators
dc.subjectCardiomyopathy, Restrictive
dc.subject.decsAdult
dc.subject.decsAge Factors
dc.subject.decsArrhythmogenic Right Ventricular Dysplasia
dc.subject.decsCardiomyopathies
dc.subject.decsCardiomyopathy, Dilated
dc.subject.decsCardiomyopathy, Hypertrophic
dc.subject.meshAdult
dc.subject.meshAge Factors
dc.subject.meshArrhythmogenic Right Ventricular Dysplasia
dc.subject.meshCardiomyopathies
dc.subject.meshCardiomyopathy, Dilated
dc.subject.meshCardiomyopathy, Hypertrophic
dc.subject.meshCardiomyopathy, Restrictive
dc.subject.meshDefibrillators
dc.subject.meshDisease Management
dc.subject.meshEurope
dc.subject.meshFemale
dc.subject.meshHumans
dc.subject.meshMagnetic Resonance Imaging
dc.subject.meshMale
dc.subject.meshMiddle Aged
dc.subject.meshProspective Studies
dc.subject.meshRegistries
dc.titleThe Cardiomyopathy Registry of the EURObservational Research Programme of the European Society of Cardiology: baseline data and contemporary management of adult patients with cardiomyopathies.
dc.typeresearch article
dc.type.hasVersionVoR
dc.volume.number39
dspace.entity.typePublication

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